Wheelchair use by patients with amyotrophic lateral sclerosis: A survey of user characteristics and selection preferences

Trail, M.; Nelson, N.; Van, J. N.; Appel, S. H.; Lai, E. C.: Wheelchair use by patients with amyotrophic lateral sclerosis: A survey of user characteristics and selection preferences. I: Archives of Physical Medicine and Rehabilitation, 2001(82), s. 98-102.Language: Engelsk

Summary: The aim of this study was to determine wheelchair types and features that are most beneficial to patients with amyotrophic lateral sclerosis (ALS), to ascertain at what stage of disease and disability patients benefit from wheelchair use, and to pinpoint the differences in patient characteristics between the users of manual and motorized wheelchairs. Results: At the time of the survey, the patients mean Appel ALS rating scale total score was 84.5 (range, 48-138), indicating moderate disability. Forty-one patients reported that wheelchairs permitted them greater interaction in their communities; 33 were very satisfied with the positive impact of wheelchair use on their activity levels. Most users did not work and needed caregiver assistance for activities of daily living. The most desirable wheelchair features provide extra comfort (supports for the head, neck, trunk, extremities) and have improved maneuverability (lightweight frame, smaller wheelbase). Undesirable features are low sling backs and sling seats, nonremovable static leg rests, and large frames. No significant differences were reported between manual wheelchair users and motorized wheelchair users in terms of overall disease symptom severity, arm and leg strength, and bulbar function. However, motorized wheelchairs offer patients a greater sense of independence and an improved sense of well-being

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